What a week!

So, I promised an update and here it is. This is a hard one to write because it comes after a long week of dealing with things that were a result of her heart cath/angiogram. On Tuesday evening we ended up in the ER at DeVos because of a hematoma in her belly that came from her procedure. She was in a lot of pain and after a very long night, they found that it was not bleeding anymore which was a blessing, but she will also have to live with the pain for a bit until it dissolves back into her body. We were sent home with instructions which included "if you have a fever of 99.5 or greater" you should return to the ER. Well, wed. night Kasi had a fever of 101. We didn't take her back into the ER that night though, I know, I know....but she was fine! :-) We did end up back at U of M though on Friday to check everything out. Of course when the Dr.s saw her hematoma they couldn't believe that it was were it was at. I guess these things don't ever happen in this place in the body. Well, never say never! We always say, only Kasi. She is already on restrictions so there was nothing really new for her to do or not do.
While we were there Dr. Stanley came in and talked to us to so we wouldn't have to have another trip up there on Monday. YAY!!! What he told us and what we saw in the images were what we saw in the ones from DeVos, but maybe a little better defined and detailed. The narrowings themselves are not super bad, but the pressure difference is the great cause of concern. Her kidneys are kicking out a hormone to boost her blood pressure so they get enough pressure to them. To give her blood pressure meds would be like a dog chasing his tail. It effects the blood pressures everywhere so the kidneys would kick out more hormone and it would go up even more. After a period of time this does do damage to the kidneys. Dr. Stanley did tell us that in order to do this surgery Kasi would have to be open all the way down her belly and across it as well. This surgery has very high risk involved and it seems a long recovery. Dr. Stanley will be talking with her cardiologist on Monday and I will then get a call from him.
Please pray for Kasi as she tries to process all of this. For Ron and I as we try and figure out how we will be doing this. Our family as we all process this. And mostly, for the Dr.s that they will be given wisdom to know absolutely what they are doing before they go in. This is everything BUT routine.
This week has been full of tears for us. Now we look to the future of uncertainty, knowing what is uncertain to us, is certain to God. As for my heart, I trust, believe, and have faith. I am also, still a mom and know that God shares my heart, because He too watched His son suffer.
Kasi is remaining strong, although it is starting to break her down too. This is okay though, she has alot in front of her that she has to think about.
I will update again later......when there is more to update!
Jodi