Today I write just to update and reflect on what has happened in the last few days. God has reminded me that He is the great I AM and that is really what I am holding on to and will need to get us through the next few weeks and months.
Yesterday we met with Dr. Stanley at U of M and little to our knowledge he has been following Kasi's case since she was a "tiny tike" as he called her. That was refreshing for us because then we don't have to go into all of her history and try to explain her body. He came in the room actually and told us that there are horses and cows, but Kasi, you are a zebra. Yep that is how unique she is on the inside. Little does he know that she has such an incrediable faith that all of this can't shake us because God's strength is bigger than our weakness. He will learn that about us that is forsure. Dr. Stanley will see a family that is on our knees and will see things just happen, because our God is bigger.
To kind of sum up our visit we were coming home and thinking we were going to have to go back in sometime for some tests and go from there. As of this morning, Dr. Stanley called me again and said sooner the better. I am currently waiting for a call from his nurse to schedule an appointment to have a look at her kidneys and aorta by her renal vessels. He then will review and we will schedule a surgery. There are a couple of options depending on what it looks like in there. One option is a bipass and the other is a patch. It really depends on how much scar tissue she has in there and other factors as well. We do not have a time frame in which this will be done. I am praying that it is all done before she starts school in the fall. Dr. Stanley also really stressed the importance of her inactivity and the fact that even having a close call with a deer on the road could cause her blood pressure to spike high and cause a stroke. So, with that, I pray for protection over her. For all of her body to get the blood supply it needs and that she may thrive as we wait.
What does this look like for her? I have talked to her a little bit, but she is very strong and at the sametime I am not sure she knows how to process this. I know I don't at times. We are super excited that we have found someone to help her, but helping her means we have a very hard road to go down. We once again are faced with life and death issues. We are confident that God is in control and that His will for her is perfect and for her to have life to the fullest. This doesn't mean that this world isn't full of pain and/or discomfort. We will face this "stuff" head on and go foward leaning and trusting in Him who has given her every breath. I, personally am at a mixed emotional state. I trust in God and right now I am praying that the Holy Spirit posess me in such a way that I can feel all of the Joy, Hope, and Peace that comes from Him. It is a process I understand, and right now I have to grieve a little of the past and all of the "things" we have gone through when she was a baby. I know we will get through this and we will see another piece of who God is and rejoice with Him. I am currently searching for those who need to see Him through us and looking to Him to reveal Himself in each moment.
To God be all of the Glory for each day of life! Don't take any of them for granted....do something for Him today!
Kasi, I happen to love Zebra's, they are one of my favorite animals...they are a beautiful creation from God!!! I am soooo excited to see God do His amazing work and move the mountains! Love, Love, Love you all!!!
ReplyDeleteGod's perfect peace and grace to all of you. He is above ALL things and his love endures forever. Hugs!
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