Jan. 1 2009

First...Happy New Year to all of you. It is great to look back at the past year and see God's hand in our lives. I am so thankful for all the many blessings He has given me!
This is just a quick update. Last time I wrote it was about Kasi's feet and legs. I did call her cardiologist and he wanted to see us first thing the next morning. We were there and they actually got there a little early to see us which was nice, no wait :-) Dr. Malcolm did a EKG and took her blood pressures. They were a little high, but not so bad. Then they did an ECO, all of this is a normal appointment for her, just so you know. All of the results were the same as before the surgery. This is good because it means that her aorta has not narrowed any more than before the surgery. It also did not improve. He stressed the fact with us again that he has had many Dr.'s look at her case. Three from U of M and the specialist around here. They know that they cannot just go in and "fix" her aorta. They can't balloon it or do any of the "normal" techniques to fix her aorta. They would have to replace it and all the major vessels that flow off of her aorta. So, at this time we are going to watch and wait. He said her body is still adjusting to it's new form. I have to call him again at the end of next week to let him know if anything has changed.
I want you to know that Kasi has a hard time with this. I keep her down for most of the day and she only really walks around for brief time periods. Her hands are now getting purple as well, and today I was not the only one who saw it first hand. So did the family. This is not a normal just turn purple this is a yuck color and her face at times is grayish. I am not being funny about this. I made Kasi sit again for a while and she just cries. She is sick of it and her comment to me was...."Mom, you know it doesn't help. It just is what it is." I held her for a few minutes and she got herself put back together and went on. She knows it is not "normal" and I think she is just praying it goes away. That is what I am asking too. We have seen God work amazing things in her already and I am sure He won't stop now. I am just praying for His will once again to take place and for us to be all He wants us to be through this. It is a long haul and it is only 3 weeks out. We have a while to go and it is a life change for a bit. Pray for patience and understanding as we go through this. Understanding for Kasi as we MAKE her sit and rest. She still doesn't have pain so she thinks she is good to go. She is not!
Thank you for all of your prayers and continued support to our family!
We love you all!