Here we are 4 weeks since we have left home. Reflecting on it all seems a bit much yet, but slowly we are talking about stuff of the first days. I am not sure I remember it all, and I know that Kasi does not. She doesn't even remember all the tubes and stuff she had in, which she went for a walk with. It seemed like she was so with it, but now I know that that is not true at all. I also know that she walked extremely well, which I half knew, but seeing others on the floor come out of surgery with a surgery that is not half of what Kasi's was I really understand the shock the PT had when he said we were going to walk and she walked. She just got up and walked! Now she cruises the halls with her friend "the tree". (that is her IV pole)
Today she was allowed clear fluids only once again. This is because her levels didn't go down anymore, but instead they went up. She is now over 100 for both enzymes. They did allow her to have clears because she is not in pain. She does have a little nausea, but they can give her meds for that and it seems to take care of it. We will see what her levels do tomorrow. I am not sure what they will do if they go up, I do know that when they go below 80 Kasi will be able to have fruits and veggies. Absolutely NO fat. That might be a bit yet, we will get to a low fat diet first and see how that goes. The enzymes that they watch are ones used to help the tummy digest fat. It is produced right away when something goes in your mouth. Amazingly those enzymes are located in your saliva too. So, it is not a surprise that her levels went up a bit, but they shouldn't go higher unless her pancreas still is not working properly. Tomorrow will tell us a lot. We will continue on clear liquids until she drops her numbers again. Today she had 1 whole Popsicle and a 1/2 jello cup. She did have water too, although not a full glass yet. We are taking this one day at a time knowing this is not a process that can be rushed. Once again they told us that she needs to be putting some of her weight back on before she goes home. Then they will feel that she is clear and will not have anymore pancreatitus. She also will not get it back, because it is from surgery it is not something we will have to worry about in the future. I know some can have a flare up, but those conditions are different than Kasi's. That is very good news for Kas.
As you can imagine this is getting really hard as Christmas is getting closer. Ron has done some Christmas shopping already and I am sure he will be doing more :-) I look online during the day, and then tell him where to go and get the deals. It will be much harder to do for the girls.
Also, we always have our house all decorated for Christmas with our tree up and all our lights all around. I can't imagine when we will be doing all of that. Kasi and Kelly (young life leader from Unity, and my friend that my kids are stealing from me....) made some Christmas stuff today. Some of that was paper ornaments that I hung from our window and yesterday Kasi and I painted some Christmas snowmen. We are trying to get into the Christmasy spirit up here. We are hoping we won't have to much longer, but it is December!
Today over all has been a good day. Kasi struggled with a few tummy things, but nothing her meds couldn't handle. Tomorrow we will see what her numbers did, and we are praying they go back down. She is handling this all extremely well. She fights that sick feeling and just moves on with her day. Unless she has to be close to a bathroom, which happens too with all of this, she wanders around finding things to do and looking outside.
Thanks again for all of your prayers! They are a blessing to us! Please keep our family back home in your prayers. Ron is doing amazing with them and so are Grandpas and Grandmas, but it is truly not the same.
I will update again tomorrow, unless of course there is no news. Then just re-read this post because it will have been another day of the same.
Blessings!
Jodi and Kasi,
ReplyDeleteSo glad to hear the good news...I bet that popsicle tasted awesome!!!May torrow bring more clear liquids...You are in my daily thoughts and prayers...I'm looking forward to seeing you both next week!!!!May you both be blessed with a restful night!
Julie Essebaggers
Hey Kasi and Jodi~
ReplyDeleteit's the Katts and we love you very much. We all look for your new posts each day and continue rejoice with you and pray for daily healing. I wanted to share that Ben prayed to close chapel today. It was sort of an incentive to stay calm and worshipful during chapel. He did a beautiful job. Amazing that his desire to pray could overrule his desire to talk and wiggle!! And Kasi...I can just picture you wheeling around with your tree-friend bringing joy with your smile.
Blessings to you.
I would say your tree-friend needs some Christmas spirit! Maybe an angel or star topper, some garland, and a sprinkling of ornaments? Admiring your strength and perseverance!
ReplyDeletePraying for your journey to be filled with much Light!