The end of a long day....again!

Tonight as I look at Kasi she is finally sitting up in bed watching a little TV.  I believe after a long process of figuring out that Kasi doesn't tell you when she hurts she actually just copes, they have her pain a little more under control.  Kasi is extremely strong as I have said before and it most-likely is because she has been exposed to so much pain over her life and especially as a baby.  Her body and brain kind of take over and she has things she does naturally to cope with the pain.  As good as that could be, it is also not nice when her body is in real pain and she doesn't know how to feel it or explain it.  Which can cause you not to breath deep and can cause you not to wake up.  I have to say, Kasi is awake right now and is breathing pretty good.  It has been a really long day though.  God is good and He is working in this room.  There were times today that Kasi sats were dropping in the 70's and she just couldn't breath very well.  They have been turning up her O2 and now they finally have it set at 6 liters and 50%.  What that all means I am not sure, but it is a lot more than before when she was on a nose thing at .5 liters.  The fluid wants to take up residents in her lungs, and we are praying against that!  I have prayed over her silently and together.  We have had many answers to prayers and we have a buzzing going on that I love because it is giving me peace to know that people aren't forgetting to pray.  This is a long process and it is looking like we will be in the PICU until Thursday.  On Thursday she will have a angiogram to check her repair.  She will once again be put under and have a breathing tube.  Pray that her belly starts working before that, that her lungs won't be lazy, and that the fluid is GONE!  In Jesus Name! 
I am kind of scattered with all of my thoughts of the day and there is not really anyway to sum them all up.  I found myself in the PICU pleading with the Father again as I saw Kasi not gaining.  I saw her is such pain I would look out the window and say "Lord give me the strength to show her Your strength and that she CAN do this".  Kasi has fought all day!  She has worked through the worst pain you could probably ever feel and try to get strength from muscles that have just been cut through.  She is amazing, but God's strength in her was so awesome to see today.  She now feels good about her day and I am very proud of her.  She has fought and now it is time for rest. A little anyway, she will still be getting up every hour and maybe even have to lay on her vibrating thing every 1/2 hour. 
Keep  up the praying, we love you all!
Jodi

I just asked Kasi if she wanted to tell you all something and she said, through coughs and pain....my chest!  So, Please pray for her chest.  This is her plea to you all!