Wednesday...two weeks later.

Here we are two weeks after we have been admitted.  What a long haul and at the same time with everything that has happened in the last two weeks it has flown.  It is because my brain is still in this "Kasi is recovering from surgery" place.  Every night we wake up many times and that makes the nights kind of blend into the days. 
Tonight we skyped home and that was hard for me to see the kiddos and my arms ached a little to hold Nathan again.  He needs his mommy, but he is in good hands with my mom and dad.  It was good to hear all of their school stories and stuff of life.  We are a family that is used to sitting down at the end of the day around a dinner table and share what has happened in that day.  I am really missing that.  All of the goofy stuff of Ben and all of the serious conversations with Aubree.  Ok, the not so serious ones too because she is a funny funny girl!  At the same time, Kasi and I are really bonding again up here.  Not that we have ever been "not bonded" but we have a different relationship than most 14 year olds and their moms.  We still get into little battles, but really we appreciate each other, and I don't think that usually happens until kids are much older.  I am blessed to have that now.
Kasi had a really good day today and I want to put her requests on here as well as her devotional verse for today.  These are the first things that she has lead with emotionally up here so I believe it is important to her heart so I will share.
First, her request is for her lung to start inflating.  She is going through some vigorous RT to open this up.  It is okay, but it does hurt her incision and her back.  It is for a good cause, because it is super important that her lung re inflates of course!  Also, for this tube to come out of her nose.  It goes to her belly and tomorrow will be day 14 without food or drink.  She is kind of sick of it, but she never complains.  She is nervous about getting it out because of the risk of her belly not being ready and then having to have it put back in.  She has heard that it wasn't pleasant for that to happen.  Since she has been struggling with this for so long, she is worried that her belly won't be ready.  Please pray that when it comes out it stays out.  I really believe that everything is ready, but Kasi has to believe that too. 
Now for Kasi's devotional for today.  She showed me tonight what it was because it was very meaningful for her.  I love this!!

Isaiah 25:1
O Lord, you are my God; I will exalt you and praise your name, for in perfect faithfulness you have done marvelous things, things planned long ago.
Kasi once again can see and knows God faithfulness to her.  She knows He has done marvelous things, that is why she has peace.  She is God's child, of course He will care for her. 


Now to the "stuff" of being up here.  Kasi's left lung is still diminished and her lower lung still down.  She is working hard on it.  Her white count still up, but lower than yesterday.  She found out today that she is allergic to a med she was on and she was getting hot flashes and flushes.  They discontinued that.  When I start posting about an angiogram, that is when we are getting to the home stretch.  She has to have her lung up, white count down, and tube out before they think about doing one.  We have to have an angiogram before we go home.  We are hoping we are home before Thanksgiving!