we are moved!

Well, here we are on the floor and out of the PICU.  I am glad that we don't have the ICU status anymore, but the care we now get is a little less.  Okay a lot less.  Kasi still have a lot of meds that are getting pushed through her IV's and she still can't eat.  She has her NG tube which was not being nice to her at all today and they have had to flush it many many times.  She did pass some gas!!!!  Yes very happy to report that, and she is in more pain because of it.  Kasi has decided to not push her pain button because morphine could slow her belly down.  She has pushed it now and is sleeping, she is exhausted. 
Tomorrow it is all up to me to get her going for a walk, or two.  I have taken her to the bathroom and to do that I have to unhook everything and let me tell you I am getting pretty good with an NG tube now.  I know how they thing works and how to hook it all up.  My biggest thing is keeping everything untangled.  I am getting much better at that.  I told Kasi that tomorrow we will look at how I will have to give her a "bath" here on the floor. 
Kasi also has a lot of fluid on her still.  I can see it in her back and tummy.  It actually bulges in places and we kind of laugh at it.  She is still draining out of her chest tube "hole".  That too is kind of funny because she is draining so much that they, we, me, would have to change her so many times that she was getting funny skin because of the tape.  So, last night in the PICU they crazy night nurses, well, they put a poop bag on her side.  Let me tell you, it is perfect!!!  Now we just drain the bag =)  It sounds funny, but it looks as if that is what it was made for.  As for her fever, she seems to be done with it for the most part.  She does get "warm" but no real fever today.  Her cultures are negative right now and that is great news.  I am pretty sure that they will remain that way.  Her white count is getting back down to normal too.  They put her on antibiotics right away yesterday and she seems to be over that hump. 
We are seeing a lot of good things and we are thankful for that.  They will be doing an angiogram at the beginning of next week.  Personally, I want to leave to go right after that, but we will see.  This place is not DeVos in the quiet and family friendly way, but of course all of the specialist are here.  I have heard more often that Dr. Stanley is the best in the world at this type of surgery so we are happy he is in MI.  We will push through the rest and I will be Kasi's number one advocate!
Keep praying for healing and for her pain to go away completely.  She is very weak, but stronger than most.  She is getting praise from all the doctors and nurses because of how well she is doing.  They are amazed at her fight against the fluid on her lungs too.  It was/is amazing to see God's strength in her.  We are keeping our focus and rejoicing in the victories! 
This is becoming very hard on the rest of the family though.  Just keep the boys in prayer!  Aubree too, but she is a little older to understand.  Ben was crying to me on the phone yesterday and just wants us home.  Ron went home today so it is a little more "normal".  That makes it hard on everyone.  Peace at home is what Kasi and I pray at night, so if you can help us in that prayer we would love it.  We will try to rest here again tonight. 
Thank you for your faithful prayers! 
God is giving strength and they are being answered.  I believe she is going to do this quicker than we thought before.  She is God strong!
Jodi
PS....we had a member of the softball, swimming, and football team come in our room and sign a hat for Kasi.  We told the football player to win, he is John # 49.  And of course the rest of the talk was softball....hehehe...she plays 1st base and I know we have watched her play.  Fun!  So, Aubree has a hat!